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Patients can put their own health on record

PATIENTS in Swindon who need emergency care will soon be able to ensure that healthcare staff have quicker, easier access to important information about them.

The NHS Summary Care Record, which is being rolled about across the town over the next few months, is a secure electronic record which contains key health information about a patient’s medication, allergies and any previous bad reactions to medicines.

This information can make all the difference to ensuring safe treatment in an emergency when no other information is available, for example, when a patient’s GP practice is closed.

Dr Elizabeth Mearns, medical director for NHS Swindon, said: “I am pleased that all patients in Swindon will soon be given the opportunity to benefit from having a Summary Care Record.

“Patients with a Summary Care Record can be sure that, should they become ill or have an accident, healthcare professionals treating them will have their health information at hand.”

Patients have the right to opt out of having a Summary Care Record and can do so easily by completing an opt-out form, which is included in the letter being sent to them, using the freepost business reply service.

Safeguards for patients who do decide to have a record include healthcare staff having to ask their permission before a record can be viewed. Access is restricted to staff with a chip-and-pin NHS smartcard involved in a patient’s treatment.

Comments(34)

Robh says...
7:19pm Tue 7 Feb 12

The only choice you have is to opt out otherwise you will automatically be included. Sounds a bit wrong to me just like the organ donor proposals.

You should have to give your permission to be included in these records otherwise what else will they assume you have agreed to.

Meldrews Dad says...
7:36pm Tue 7 Feb 12

Robh is spot on. Why should we have our medical records splashed all over the web?
Security will go by the boards, a quick £100 in an envelope from a national newspaper and all you records will be passed over.
Forget all the assurances you are given about authorised persons only having access. In reality any nurse or employee will be able to get to your records.
If Scotland yard and the FBI can have their conversations taped and made public what hope for us?
No doubt all those who filled in the census 100 years ago were told everything would be confidential - today you can read their answers to health questions.
Yes I will complete the opt out form but it should have been an opt in form.
From now on I tell my doctor nothing other than symptoms! They clearly cannot be trusted with sensitive data.
I should have the right to ensure that any medical records over 12 months old are destroyed.

Punctured bicycle on a hillside says...
7:55pm Tue 7 Feb 12

Meldrews Dad, they are talking about medical records not bank details, what's the problem?

Robfm says...
8:02pm Tue 7 Feb 12

Don't get to excited, whilst you can sign up to the scheme it will be several years before it is ready to go, that's assuming the computer systems work, the last lot didn't.

However you have only 12 weeks to opt out.

Punctured bicycle on a hillside says...
10:07pm Tue 7 Feb 12

Did you mean "too excited" Robbo?

You lose all credibility when you profess to know everything yet can't even spell. In any case you don't sign up to the scheme, you do nothing and you become part of it. A good thing in my opinion.

Robh says...
10:43pm Tue 7 Feb 12

Everyone is entitled to their opinion but what is a good thing? The scheme or automatically becoming part of it. If it is the latter then are you happy to make descisions for others?

"Dr Elizabeth Mearns, medical director for NHS Swindon, said: “I am pleased that all patients in Swindon will soon be given the opportunity to benefit from having a Summary Care Record." The only opportunity is to not benefit.

I say again the question should be to opt in not to opt out

Punctured bicycle on a hillside says...
11:07pm Tue 7 Feb 12

That's because you are a stupid refusenick Robbo. You are paranoically suspicious about absolutely everything.

If people had to opt in nothing would ever get done because of the total ambivalence towards a scheme designed to benefit patients.
If it is the latter then are you happy to make descisions for others?

What on Earth are you talking about?

How would being in favour of a government scheme mean I would be in a position to make decisions for others?

Face it Robbo, you are just worried about your 25 inch thick paper records exposing you as a lifelong smoker if they ever had enough resources to digitise them.

Robh says...
11:38pm Tue 7 Feb 12

What a load of abusive garbage.

Knobfm says...
11:52pm Tue 7 Feb 12

If you don't like garbage you shouldn't be on here.
These threads are only to put the Newsquest ratings up.

Everyone else is here to marvel at my gramner and speling ablities

Now come to the Crappy Arms Motel at Snout Martin and watch Meeee lying my butt off.

Moth says...
2:07am Wed 8 Feb 12

I think the scheme is wide open to abuse.

Breaches of confidence are commonplace, in fact, the Adver had an article before Christmas about the amount of staff at GWH who had been disciplined for breaching patient confidentiality.

Think of the consequences of a breach of these Summary Care Records. You apply for a job, a would-be employer decides to check on it via the internet (and it will happen) sees something they don't like and you don't get the job.

The opportunity for this information to fall into the wrong hands and lead to blackmail is high, despite assurances to the contrary.

How many breaches of confidentiality with government data have there been from Civil Servants leaving laptops with sensitive data in public transport etc.,? Far too many.

So, would I trust ANY personal information to ANY government department? Not a snowball's chance in hell.

I, for one, will be opting out of this big brother scheme but as others have said, we should be given the opportunity to opt IN if we want, not out.

Just another number says...
7:10am Wed 8 Feb 12

I'm more worried about the poor quality of the data that the Swindon PCT holds.

What has eventually arrived in my file, after someone has typed the barely legible notes of yet another locum, rarely resembles reality. I've have had to ask that records be corrected or even taken out because the information entered clearly didn't apply to me.

The worst this has caused so far is that I've had to have expensive tests repeated and wait weeks again for the results before needed treatment was given. It could easily be far worse if a doctor fails to note an allergy or serious complication for a patient. And if this is happening in my records, it must be happening to others.

I've even had the head of a department, who refused to believe an error had been made, ask a locum to read back his notes to me, after I corrected him when he misread his own notes, he tried to tell me I was wrong. When I went on to tell him what the next few lines of his notes said, without seeing his notebook, he realised that I was right and clearly remembered not only the conversation but what I'd seen him write. My records were amended but without any apology.

Robfm says...
9:10am Wed 8 Feb 12

Oh dear Punctured you really 'c*cked' up this time, you attacked the wrong poster Robh made the comments you launched into, not me.

As for not having to sign up, of course not strictly speaking true.

It is right you do not have to sign up to consent but what you have to sign up to is being on the https://www.healthsp
ace.nhs.uk/ to access the Summary Care Record when it becomes live.

itsamess says...
9:42am Wed 8 Feb 12

Local GPs records are already accessible at GWH and should hold your full medical record.
If you transfer from another town to a local doctor your notes are sent on. It is foolish not to allow medical records access as anyone treating you needs to know your history as it could affect your treatment.

itsamess says...
9:58am Wed 8 Feb 12

Local GPs records are already accessible at GWH and should hold your full medical record.
If you transfer from another town to a local doctor your notes are sent on. It is foolish not to allow medical records access as anyone treating you needs to know your history as it could affect your treatment.

Bob--what on earth has health space got to do with this issue--that has a totally different function.

Robfm says...
10:04am Wed 8 Feb 12

Great in theory but the practice is quite different.

Robfm says...
11:29am Wed 8 Feb 12

Oh my goodness Walter off we go again, you have to be signed up to health space to access your summary care records if your PCT is signed up to HealthSpace Advanced Account registration, which I am advised Swindon will be doing, only then can you get an advanced registration.

I already have the literature. On page 4 of the leaflet and I quote: 'You will be able to look at your Summary Care Record at any time at a secure website called HealthSpace. You must register to use HealthSpace to keep it as secure as possible'

Unambiguous enough for you?

itsamess says...
2:30pm Wed 8 Feb 12

No Bob--i can just call in at my GPs surgery to inspect my notes at any time. So why would i need to join healthspace as all my information is available from my surgery. The healthspace is designed for medical staff and only accessible by authorised healthcare professionals with chip and pin.

Punctured bicycle on a hillside says...
9:02pm Wed 8 Feb 12

Robfm wrote:
Oh dear Punctured you really 'c*cked' up this time, you attacked the wrong poster Robh made the comments you launched into, not me.

As for not having to sign up, of course not strictly speaking true.

It is right you do not have to sign up to consent but what you have to sign up to is being on the https://www.healthsp

ace.nhs.uk/ to access the Summary Care Record when it becomes live.
Well it does get tricky when you have so many pseudonyms Robbo.

Hardly a cοck-up though, not on the same scale as yours anyway, daniel10.

Just another number says...
10:58pm Wed 8 Feb 12

Robfm wrote:
Oh my goodness Walter off we go again, you have to be signed up to health space to access your summary care records if your PCT is signed up to HealthSpace Advanced Account registration, which I am advised Swindon will be doing, only then can you get an advanced registration.

I already have the literature. On page 4 of the leaflet and I quote: 'You will be able to look at your Summary Care Record at any time at a secure website called HealthSpace. You must register to use HealthSpace to keep it as secure as possible'

Unambiguous enough for you?
Trolling again Robfm?

Or do you really assume that either no one else received a copy of the literature or, if they did, they are incapable of understanding it without your input?

Every post you've made on this thread appears to be made with the intent of trolling... are you aware of that?

Robfm says...
8:52am Thu 9 Feb 12

If everyone had received this leaflet then certain people wouldn't be talking rubbish, even though I quoted directly from the leaflet Walter still says I'm wrong, by which he means that the NHS are wrong.

As for inspecting notes at a surgery what has that got to do with anything. Also your hospital notes aren't available at the surgery.

There you go Walter: Just for health care professionals to access is it.

https://www.healthsp
ace.nhs.uk/visitor/d
efault.aspx

'HealthSpace is a free, secure online personal health organiser. It can help you to manage your health, store important health information securely, or find out about NHS services near you.

There are a variety of features you can take advantage of and anyone living in England, aged 16 or over, with a valid email address can register for a HealthSpace account.'

I suppose they made the above up as well.

Anyway another thread ruined.

Punctured bicycle on a hillside says...
9:14pm Thu 9 Feb 12

Yes, by you.

Robfm says...
6:54pm Fri 10 Feb 12

NO it was about the new system, which once gain Walter knew better.

Punctured bicycle on a hillside says...
7:52pm Fri 10 Feb 12

Ruined by you robbo, as usual.

itsamess says...
9:56pm Fri 10 Feb 12

No one has to sign up to health space and there is no need to as all your information will also be on your GPs system as well. The difficulty has always been if patients notes have not been passed to anyones new GP. I have both private and nhs care which is already on my GPs database. My GP was able to access all my hospital notes and medication given and surgery notes. Perhaps your GPs surgery is outdated-however i do know which surgery you use and they are usually up to date.
When you read something to try to prove someone wrong you should make sure you read the difference because no one would sign up to something you claim is open to all--its not.

Always Grumpy says...
9:10am Sat 11 Feb 12

Just another number wrote:
Robfm wrote:
Oh my goodness Walter off we go again, you have to be signed up to health space to access your summary care records if your PCT is signed up to HealthSpace Advanced Account registration, which I am advised Swindon will be doing, only then can you get an advanced registration.

I already have the literature. On page 4 of the leaflet and I quote: 'You will be able to look at your Summary Care Record at any time at a secure website called HealthSpace. You must register to use HealthSpace to keep it as secure as possible'

Unambiguous enough for you?
Trolling again Robfm?

Or do you really assume that either no one else received a copy of the literature or, if they did, they are incapable of understanding it without your input?

Every post you've made on this thread appears to be made with the intent of trolling... are you aware of that?
Just like this post from you then!

Robfm says...
9:21am Sat 11 Feb 12

Pff Walter goes again, implying he knows a secret about me, no secrete Walter I have posted several times on here what an excellent surgery Elm Tree is in Shrivenham, and they are up to date.

However as always because you have made an error you try to divert. I did not say you could not access at the surgery, but how much time do you think any surgery will allocate to people simply wanting to read their notes.

As for anyone accessing another's notes, what rubbish. You have to be the patient, signed up to HealthSpace and then the Advance login. Far more convenient to do it at home than waste your doctors valuable time.

itsamess says...
11:45am Sat 11 Feb 12

Bob
Being that you have made such ridiculous claims as having been given Diabetes as a result of surgery--and you died and came back to life--and seem to think it was a simple matter for Churchhill to send a radiotherapist to GWH to administer radiotherapy to cancer patients despite the fact the equipment is not here is wholly--ridiculous. Very recently you could not differentiate the difference between a programmed insulin pump and a self diagnostic implanted microchip which ensures the correct level of insulin is pumped. Finally you confused yourself as to the use of the test device you use which means you self inject.
The whole point of the summary care record is to ensure any healthcare professional who is involved in your care has complete access to your medical record as you may have allergies to drugs etc--without that knowledge treatment could be delayed as in the case of someone admitted unconcious etc. The healthcare system is there to ensure all information is available nationwide in the event you are admitted in an emergency anywhere in the country--which can still create a problem if the patient is unable to give their personal details.

Always Grumpy says...
11:54am Sat 11 Feb 12

Isn't the underlying problem with the proposed system whether you trust the computerisation of your data or not?
The record of government computerisation of records isn't exactly covered in glory. I'm not sure I would trust the system until it's been proven beyond doubt to be accurate and secure. I don't think I want to be one of the guinea pigs testing the system.

Robfm says...
11:56am Sat 11 Feb 12

And your point is Walter? Once again writing waffle to cover your error, are you now saying patients won't be able to access their records on line.

A simple yes or no will do.

Robfm says...
11:59am Sat 11 Feb 12

AG which is the point I made right at the beginning, when stating it would be at least a couple of years before it goes live.

Just another number says...
2:37pm Sat 11 Feb 12

Robfm wrote:
Don't get to excited, whilst you can sign up to the scheme it will be several years before it is ready to go, that's assuming the computer systems work, the last lot didn't.

However you have only 12 weeks to opt out.
Robfm, are you having a problems with your comprehension and memory again? The literature that was sent out said 12 to 18 months, not several years.

And may I point out that you seem to have forgotten what you wrote as well because now you're saying a few years. Which is also incorrect, both in relation to what you wrote and what was in the literature.

As you seem to have a perverse need to attack everyone else for their minor typos and errors I thought you should have some of the same. Not that I expect you'll like a taste of your own foul habits.

If were you, and I am very thankful I am not, then I would seek medical help for your frequent lapses of memory. I don't think you are even aware it's happening and that is a sign of early onset dementia.

itsamess says...
3:06pm Sat 11 Feb 12

Bob
Why on earth would any patient want to have records online in order to access them. As long as the medical teams have secure access--which is the principle behind it--i really cannot see how duplicating very personal information via the internet for idiots like you to try to access.

Robfm says...
6:42pm Sat 11 Feb 12

Not the question Walter. Why they would or would not want them is academic. They will be able to so answer the question Yes or No.

Jan you are merely engaging in semantics. The system has not yet been tested, and the leaflet doesn't actual deal with this, merely in terms of the time scale to load the information.

Just another number says...
7:18pm Sat 11 Feb 12

Robfm, you shown repeatedly here that don't even understand basic networking or computer operating systems. Are you now trying to pretend that you know about systems development and UAT testing?

You're out of your league yet again and you fail, as usual, to realise that others who comment here do know such things. You should learn to confine your statements to subjects that you know, as limited as that realm may be. I'd also suggest you look up the definition of 'semantics'. Then look up what 'several' and 'few' mean just for good measure. You seem to have forgotten the very basic distinction between the two yet again.

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