A FIVE-year-old boy from Trowbridge who is living with cerebral palsy will feature in campaigns for this year’s Children’s Hospice Week, which raises funds for children’s hospices and palliative care.

Jack Haynes, who lives with his mum and big sister Evie, experiences serious and regular seizures which can last for up to four hours at a time and receives care and support from Julia’s House children’s hospice in Devizes.

He will feature in this year’s Moments That Matter campaign, amongst stories from the 54 children’s hospices across the country.

Jack’s mum Hayley explained how the support the family receives from Julia’s House has enabled them all to enjoy their own special moments.

She said: “Jack has such a wonderful time with nurse Jess, he adores her, he never stops smiling when he’s at Julia’s House.

“I took Evie to a siblings’ event, a miniature zoo came to the hospice which I knew she would enjoy. I had a massage at home and it was amazing.

We’ve all three felt the benefit of Julia’s House.

“It is just really nice having someone be nice to you, to know that people really care about you, care about all of us, not just Jack. It is lovely knowing I am not by myself any more.”

Emma Dixon, from the children’s charity behind the campaign, Together for Short Lives said: “This Children’s Hospice Week we’re focusing on the moments that really matter to families, and the services that help create them.

“For us, Jack’s story showcases the best of children’s hospice care, bringing families together and wrapping them in a cocoon of care and support.

“Importantly, the lovely photos of his family and the care team also help us tackle some of the myths and misconceptions around children’s hospice care, showing that services like Julia’s House are warm, kind places offering a vital lifeline to families with a seriously ill child.”

A spokesman from Julia’s House said: “We provide respite and end-of-life care out and about in the local community and at hospices in Devizes and Dorset.

“Every family is unique and so is the support Julia’s House provides, visiting families at home or taking children swimming or to Brownies. As well as caring for the child, Julia’s House supports parents and siblings, so the whole family is looked after.”